Be Part of the Conversation
Register for the 2026 Spinal Cord Injury PFDD Meeting
Who should attend?
People Living with SCI
Caregivers &
Family Members
Healthcare
Professionals
Researchers,
Industry & Advocates
Interested Community Members & Supporters
What is PFDD?
Amplifies Patient Voices
Captures the lived experiences and priorities of the SCI community.
Informs Research & Trials
Helps researchers design studies around what matters most to patients.
Guides FDA Decisions
Patient perspectives become part of future regulatory discussions.
What to Expect
Join a collaborative virtual meeting where people living with spinal cord injury, care partners, clinicians, researchers, and advocates come together to share experiences that will help inform future research, treatment development, and regulatory decision-making.
Meeting Welcome & FDA Opening Remarks
Welcome to the meeting with opening remarks from a SCI Community Representative and the FDA.
Clinical Overview of Spinal Cord Injury
An expert provides an overview of spinal cord injury, including its causes, impact, and the challenges faced by people living with SCI.
Panel 1: Daily Life Impacts
Hear firsthand experiences about daily life with SCI.
Midday Break
Take a short break before the afternoon sessions.
Treatment Landscape Overview
An expert reviews current treatment and management approaches for spinal cord injury and highlights ongoing areas of research and innovation.
Panel 2: Treatments & Priorities
Discuss treatment experiences, unmet needs, and future priorities.
Closing Remarks
Meeting highlights and next steps.
Throughout the Meeting
You'll have several opportunities to listen, share your experiences, and help guide the conversation.
Pre-recorded Testimony
Hear stories submitted by people living with spinal cord injury during the nomination process.
Live Polling & Comments
Answer polling questions throughout the meeting and see community responses in real time.
Voice of the Patient Report
The experiences shared throughout the meeting are captured in the Voice of the Patient Report, a public resource that summarizes participants' perspectives and helps inform the FDA, researchers, clinicians, and medical product developers.